Day One: Symposium

Day 1 Symposium is approved for up to 6.75 CMEs and is eligible for up to 5.75 CIP credits.

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October 25, 2016

Marriott Downtown Hartford, Hartford, CT

7:00 - 8:00am
Registration & Breakfast
8:00 - 8:30* 

Introduction to the themes of the conference:

Advocacy, Ethics and Engagement are foundational principles of research.
8:30 - 9:30

Keynote Lecture (Ballroom C, D, & E):

Camille Nebeker, EdD, MS
Connected and Open Research Ethics: Ethical Research Using Personal Health Data
9:30 - 10:15

Regulating Social Media and Internet Research: Public, Private, or What? (Ballroom C, D, & E)

Ivor Pritchard, PhD

10:15 - 10:30
Break
10:30 - 11:15

Plenary Lecture(Ballroom C, D, & E):

Mark Barnes, JD
Return of Results to Research Subjects
11:15 - 12:00pm

Plenary Lecture(Ballroom C, D, & E): 

Angela M. Morley, JD, MPH
Engaging the Community of Workers, as Research Participants and as Partner-Advocates in Safeguarding their Rights and Ensuring Scientific Integrity in Workplace Research
12:00 - 12:15*
Q & A
12:15 - 1:15
Networking & Lunch (Capitol Rooms)
1:15 - 2:00

Breakout Sessions

Breakout 1

Session A (Ballrooms A & B)
NPRM Update and Potential Impact for the SBER Community with Misti Ault Anderson, MS, MA

Session B (Ballroom C)
Patient Powered Research Network Research Model, with Robert McBurney, PhD, CEO, Accelerated Cures for MS Project.

Session C
Mobile Health Research and Health Disparities, with Linda Barry, MD, UCONN CiCATS.
Community-Driven Research: Principles, Models, Community Impact, with Grace Damio, MS, CD/N, Hispanic Health Council.
2:00 - 2:45

Breakout Sessions

Breakout 2

Session D (Ballrooms A & B)
Creating Partnerships Through Play, with Lynn Fiellin, MD and Tyra Pendergrass, MEM
Yale Center for Health & Learning Gamesplay2PREVENT

Session E (Ballroom C)
Framingham Heart Study: History, Design, and Outreach in Three Generations and Two Omni Cohorts, with Greta Splansky, MS, Boston University

Session F (Ballrooms D & E)
Success Factors for Patient Engagement in Telehealth, with Christopher Peterson, PT, DPT, Cert. MDT, Hartford HealthCare Rehabilitation Network
2:45 - 3:00 Break
3:00 - 4:00

Plenary Lecture (Ballroom C, D, & E):

Jean Slutsky, PA, MSPH
How the PCORI Model has Empowered Community Participation in Research

4:00 - 5:00*

Ask the Feds (Ballroom C, D, & E)
OHRP staff and the federal partner will field questions on clinical research and human research protections

5:00 - 5:15 Closing Remarks
6:00 - 8:00

Keynote Reception at the Marriott (Ballroom C, D, & E) - separate registration required

*session is not eligible for CIP credits
session is eligible for CME credits

Agenda is subject to change without notification

Symposium