Foundations of Trust:
Connecting Our Community to Research

Hartford HealthCare and The Office for Human Research Protections (OHRP) are hosting a Research Community Forum on Tuesday and Wednesday, October 25 & 26, 2016, at the Hartford Marriott Downtown Hotel in Hartford, Connecticut.

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The HHS Office for Human Research Protections (OHRP)

This will be a two day event full of exhibits, keynote presentations, interactive workshops and networking at its finest.

Day 1

Tuesday, October 25 features a symposium style format focused on ethical issues of engaging community participation in research. The keynote speaker Camille Nebeker, Ed.D., M.S., is considered an expert in applying human research ethics in emerging technologies. Her presentation for this event is: “Connected and Open Research Ethics: Ethical Research Using Personal Health Data.” Several break-out sessions are available in various topics including: the impact of recent federal updates, community engaged participatory research, patient powered research as well as mobile health engagement. 
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Day 2

Wednesday, October 26 is a workshop-style interactive day providing an opportunity for the research community to engage with staff from the Federal Office for Human Research Protections (OHRP). This program will explore various key aspects of human research protection including the direct perspective of former participants. 
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This event has been approved for CME and CIP credits.
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  • Misti Ault Anderson, MS, MA

    Ms. Anderson serves as a Senior Advisor for Public Health Education in the Division of Education and Development of the HHS Office for Human Research Protections (OHRP).

  • Mark Barnes, JD

    Mark Barnes, JD has extensive experience in legal issues related to research with humans and animals, stem cell and genetic research, research grants and contracts, research misconduct, and international research.

  • Linda Barry, MD, FACS

    Dr. Linda Barry is the Chief Operating Officer and Assistant Director of the Connecticut Institute for Clinical and Translational Science (CICATS) at UConn.

  • Grace Damio, MS

    Grace Damio has developed and overseen many of HHC’s research and service initiatives in the areas of maternal and child health, food security, nutrition and breastfeeding, health care access, chronic disease management, obesity prevention and cross cultural training.

  • Lynn Fiellin, MD

    Lynn Fiellin is the Founder/Director of the Yale Center for Health & Learning Games and play2PREVENT Lab.

  • Yvonne Lau, MBBS, MBHL, PHD

    Yvonne Lau, MBBS, MBHL, PhD is the Director of the Division of Education and Development (DED) at the HHS Office for Human Research Protections (OHRP).

  • Robert McBurney, PHD

    Robert McBurney is CEO of the Accelerated Cure Project for Multiple Sclerosis (ACP), a non-profit organization accelerating efforts to cure MS by catalyzing research.

  • Angela M. Morley, JD, MPH

    As an IRB member, Ms. Morley reviewed over 130 biomedical protocols, principally multi-center drug and device trials. She also served as the IRB liaison to the health system’s corporate ethics committee.

  • Camille Nebeker, EdD, MS

    Dr. Nebeker’s research focuses on the design of research/bioethics educational initiatives designed for traditional and non-traditional learners with a goal of trainee’s understanding and appreciation of factors that influence the ethical and responsible conduct of research.

  • Tyra Pendergrass, MEM

    Tyra Pendergrass is the Associate Director/Community Liaison of the Yale Center for Health & Learning Games and play2PREVENT Lab.

  • Chris Peterson, PT, DPT, Cert. MDT

    Chris Peterson, PT, DPT, Cert. MDT is a clinical coordinator and physical therapist for Hartford Healthcare Rehabilitation Network in Connecticut and serves as an adjunct faculty member at American International College in Springfield, MA where he designed and currently teaches a module on telehealth.

  • Ivor Pritchard, PHD

    Ivor Pritchard is the Senior Advisor to the Director in the Office for Human Research Protections (OHRP) in the U.S. Department of Health and Human Services.

  • Jean R. Slutsky, PA, MSPH

    Jean R. Slutsky is the Chief Engagement and Dissemination Officer at the Patient-Centered Outcomes Research Institute (PCORI).

  • Sharon R. Smith, MD

    Sharon R. Smith, MD is a professor of pediatrics, an associate program director for the UConn Pediatric Residency Program, and the research director for the emergency department at CT Children’s Medical Center.

  • Greta Lee Splansky, MS

    Greta Lee Splansky currently organizes and supervises the FHS notification program for individual participants about specific incidental genetic findings.

  • John Williamson

    John Williamson is the Senior Patient Advocate and Clinical Trials Referral Liaison for the US Hereditary Angioedema Association.



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