Cancer Registry

Crucial Data Supporting Cutting Edge Cancer Research

Knowledge is power when fighting cancer. No idle databank, Hartford HealthCare’s Cancer Registries manage the vital cancer research data health care providers and investigators depend on to prevent and control cancer. The registries allow researchers and clinicians to identify which cancer treatments are working best, where cancer rates are spiking, and how patients are faring during survivorship. With their data, our clinicians can better assess efficacy of diagnostic and treatment methods, evaluate patient outcomes, and support cancer research studies.

Setting Standards of Cancer Care

An Unmatched Database on Cancer Statistics

Dating back to 1928, the Hartford HealthCare Cancer Institute Cancer Registries offer an unmatched database on cancer statistics that is among the oldest in the country, with detailed lifetime treatment records on over 198,000 patients. In fact, data from the Hartford HealthCare Cancer Institute Cancer Registries helped evaluate the standards of care followed by members of the Memorial Sloan Kettering Alliance. Registry data is widely used to monitor the quality of cancer care based on these standards as well as national standard-setters like the American College of Surgeons Commission on Cancer.

The registries’ cancer data supports development of quality studies, grant applications and research protocols. This data also guides community outreach efforts, identifying areas with the highest cancer rates where preventative education and cancer screening services are most needed.

Guaranteed Confidentiality of the Cancer Registries

Information in the Cancer Registries is highly regulated to ensure patient confidentiality. Covered entities within the Health Insurance Portability and Accountability Act (HIPAA), they follow all privacy and confidentiality regulations. Registry cancer data is reported to the Connecticut Tumor Registry under State of Connecticut Public Law, Chapter 333, Sec. 19-36-1, 2 as well as to the National Cancer Data Base in compliance with Commission on Cancer program standards.

We Follow Data Collection Standards Set by National Leaders

We collect data on all new oncology cases beginning with diagnosis. Our registries follow standards set by national leaders including the North American Association of Cancer Registrars, the National Cancer Institute, and American College of Surgeons Commission on Cancer. Each record contains a complete history of the patient’s cancer diagnosis and treatment, updated annually at the minimum with vital status and cancer-related information.

Our Team Approach - Improving the Quality of Patient Care

Clinicians, staff and administrators use the registries for detailed information on the types and stages of cancer being diagnosed at our hospitals, demographic information, the types of diagnostic and treatment care being delivered and outcome data on how patients are living with and through their cancer diagnosis.

The Cancer Registries are an important resource in measuring the quality of patient care throughout the Hartford HealthCare system. We can compare our results to those of Memorial Sloan Kettering as well as other hospitals in our state, region and across the nation.

Hartford HealthCare Cancer Institute